Information about Cystic Fibrosis
Cystic fibrosis (CF) is a genetic condition affecting more than 10,800 people in the UK. You are born with cystic fibrosis and cannot catch it later in life, but one in 25 of us carries the faulty gene that causes it, usually without even knowing.
What is Cystic Fibrosis?
The gene affected by CF controls the movement of salt and water in and out of cells. People with cystic fibrosis experience a build-up of thick sticky mucus in the lungs, digestive system and other organs, causing a wide range of challenging symptoms affecting the entire body.
Cystic fibrosis affects everyone differently, but for many it involves a rigorous daily treatment regime including physiotherapy, oral, nebulised and occasionally intravenous antibiotics, and taking enzyme tablets with food. Some people with CF will have a feeding tube overnight.
For those who are very ill with cystic fibrosis and have very poor lung function, daily life can be a struggle as basic tasks can leave them breathless. Some patients use a wheelchair to get around and oxygen to help them breathe.
Who has it?
To have CF, you need to have inherited two faulty copies of the gene (one from each parent), and as there are many different gene mutations that cause cystic fibrosis, each person with the condition can have very different symptoms depending on the two genes they carry. While people with CF often look healthy on the outside, each individual is battling their own range of symptoms on a daily basis.
How does it affect the lungs?
The build-up of mucus in the lungs causes chronic infections, meaning that people with cystic fibrosis struggle with reduced lung function and have to spend hours doing physiotherapy and taking nebulised treatments each day. Exacerbations (a sudden worsening of health, often owing to infection) can lead to frequent hospitalisation for weeks at a time, interfering with work and home life.
What does it do to the digestive system?
As the pancreas becomes blocked with mucus, enzymes required for digesting food cannot reach the stomach. People with cystic fibrosis often need to take more than 50 tablets a day to help digest food and keep respiratory symptoms in check.
Cystic Fibrosis Charity Places
Join the Glencoe Marathon Gathering Team CF and help us fight for a life unlimited by cystic fibrosis! We are working towards a brighter future for everyone with cystic fibrosis by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.
We have FREE Charity Places available in exchange for a pledge to support the Cystic Fibrosis Trust during your Glencoe Marathon Gathering adventure. To join CF at this years event please choose your distance below and click here (firstname.lastname@example.org) to obtain your unique redemption code for your free place.
Minimum Sponsorship Pledges
Glencoe Marathon - minimum sponsorship pledge £375
Mamores Half Marathon - minimum Sponsorship pledge £225
Once you have obtained your redemption code from the Cystic Fibrosis Trust simply register here in the usual way, then start fundraising!